tag:blogger.com,1999:blog-3563456583012555283.post781511731274643844..comments2023-04-26T07:30:16.380-07:00Comments on Taking Notes: The Naked PatientAnonymoushttp://www.blogger.com/profile/10748499370910869188noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3563456583012555283.post-44114870508115296062011-08-17T12:46:43.577-07:002011-08-17T12:46:43.577-07:00It's a good post, especially familiarize yours...It's a good post, especially familiarize yourself with the med your Doctor gives you. When I had a herniated disc in my neck, I went to 6 Doctors, before finally getting to the bottom of it. They told me it's all in my head, gave me meds off label. Something you might want to write about. One shot did the trick. After all that. I know my Doctors do get perks from Big Pharma, but I do not take anything until I look it up and do the same for my campanion. He thinks Doctors are God. What can you expect. There was a time when they made house calls. I don't trust any of them. Thanks Olivia, this was most helpful to me. I have everything in order, since that Schiavo case. My sister will make decisions for me, in case I'm not able.sandinbrickhttps://www.blogger.com/profile/01107969564321090283noreply@blogger.comtag:blogger.com,1999:blog-3563456583012555283.post-67477785552211161032011-08-16T17:12:14.944-07:002011-08-16T17:12:14.944-07:00Amanda,
I get it. If you have the time read the ...Amanda,<br /><br />I get it. If you have the time read the other post: The naked spouse and let your hubby read it. He is not alone and neither are you. We are all the "invisible" population.<br /><br />The extended family is rarely of any help and contribute to the aggravation because there are hurt feelings as well as nerve damage and chronic pain. We all want everyone to "get it", but they either choose to be ignorant or are too stuborn and want everything to be the way it was. Denial can be very powerful.<br /><br />As far as the kids, I too get that. We have spend our entire time together making things as "normal" for them as possible. They turned out to be great empathetic children.<br /><br />Hang in there, you are both doing great.<br /><br />PEACEAnonymoushttps://www.blogger.com/profile/10748499370910869188noreply@blogger.comtag:blogger.com,1999:blog-3563456583012555283.post-62846015412164536692011-08-16T15:01:14.998-07:002011-08-16T15:01:14.998-07:00Olivia,
This has hit home for me and my Spouse. N...Olivia,<br /><br />This has hit home for me and my Spouse. No one truly knows what chronic pain is until you live with it. I never thought that at my age I would be in chronic pain and as I get older it will only get worse. How do you explain to a 4 1/2 year old that Mommy's pain is not going to get better and that you cannot play with him right now. I I happen to have a Pain Doctor that will do everything he can to get me off as much pain medication as possible. I just had a procedure to burn my nerves last week, 2 out of the 4 nerves are better. The other 2 are causing me extreme pain and my sciatica has started acting up again. I hopeful that this week they will calm down and I will be in less pain. I will never be pain free but the thought of less pain gives me some hope.<br /><br />My Spouse is very supportive and has stayed with me through the ups and downs. No other Family member truly understands but him. One asked me if there was a time limit on disability. I am like you are a freaking idiot. SSDI is not always permanent, but it most cases people are disabled for life. Many have asked my Husband why he stays with me, because in their eyes I am a complete failure. He tells them "He loves me and I am not dead". <br /><br />AmandaAmanda aka LibrlOkie77noreply@blogger.comtag:blogger.com,1999:blog-3563456583012555283.post-19123189476727717442011-08-16T08:33:41.970-07:002011-08-16T08:33:41.970-07:00Excellent advice. The healthcare system in this co...Excellent advice. The healthcare system in this country is a disgrace. We live in an age where politics and money take precedence over the needs of people. Insurance companies, doctors and the pharmaceutical companies are doing everything they can to rob patients of the essential basic care they need. It seems to me that the Hippocratic Oath has gotten lost in all of this. Wise patients should learn all they can about the procedures that are recommended for them. The same goes for dental care.Susan Klatz Bealhttps://www.blogger.com/profile/17965243532695182143noreply@blogger.comtag:blogger.com,1999:blog-3563456583012555283.post-18808907675631063682011-08-15T18:56:37.591-07:002011-08-15T18:56:37.591-07:00This article is EXCELLENT, and a must read for ANY...This article is EXCELLENT, and a must read for ANY patient and/or their spouse/caregiver. Many patients don't yet understand that they need to be in charge of their own care, so you've provided a valuable service for health care consumers. As always education is key!cheeriogrrrlnoreply@blogger.comtag:blogger.com,1999:blog-3563456583012555283.post-69794932672259855842011-08-15T18:46:33.743-07:002011-08-15T18:46:33.743-07:00Ironic that I just had a flare-up that started an ...Ironic that I just had a flare-up that started an hour ago. I'm a very sympathetic person, maybe I felt your hub's pain as you focused on this piece? Just kidding, of course. You offer good advice. Particularly the part about physicians being mind readers or even remembering your condition from one visit to the next. I finally became an empowered patient after three years of expecting my Doctor to remember, magically, every detail of my condition. No, I do not fault my Doctor, she is without a doubt an ANGEL. I love her like a Sister, but only after some real frustration. <br />Right now, I'm leaning very far to my left to relieve an exceptional amount of pain in my right shoulder blade area. This is nothing new, but it is infrequent. Usually once or twice a month I experience a level 9 emanating from some area of my body which pisses me off to no end. It's frustrating that I have no control and the "attack" has no precursor to warn me. It wasn't until I started a diary that my Doctor got an accurate perspective. Even if you are "soldiering through" your pain, write a daily diary about where it is, what it feels like (ie compression or penetration) and why you "think" it might have been triggered. If or when it impacts your ability to be social or meet your obligations as an employee, employer, family member or Parent be sure to document it. This gives your physician some idea of severity without providing the moans and groans. Remember, your physician deals with a variety of patients that range from very low and very high pain thresholds from one to the next. By writing it down, you provide a significant indicator of the severity. It can also provide YOU with clues regarding the triggers. <br /><br />And with that, I'll say kudos to Olivia for bringing this issue up. And I dare say that Universal Healthcare won't change the necessity for YOU, as a patient, to take steps to ensure proper care. Although I will say the new electronic files have helped my Doctor to remember our discussions from one visit to the next. Thanks to Pres Obama and the ACA ;)BlueTroothhttps://www.blogger.com/profile/14977508981699102582noreply@blogger.com